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The Robert J. Gorlin Symposium

February 6, 2022 @ 3:00 pm - 5:00 pm

This new session at WORLDSymposium 2022 is intended to discuss the urgent need to develop and implement precise metrics for measuring cognitive change in children with lysosomal diseases. Precision Metrics for Cognition will bring together leading experts to provide an explanation and rationale for using growth scale values (GSVs) to measure developmental longitudinal cognitive change in children with early onset and severe lysosomal diseases.

Through examples and case studies, experts will share more about the need for increased precision in measuring cognitive change and how GSVs are useful when facing the challenge of revealing the developmental trajectory of young children.

The goal of this session is to provide attendees with insight into the perspective of regulatory bodies, and determine how to apply this approach in their research to reliably and precisely measure cognitive change.